I've started this post 1,000 times over the past 2 and a half weeks. There's no good way to tell it. If you're not in the mood for sadness, you've got to move to another post or blog.
Because there really are no words that adequately explain how my pregnant sister in law could be induced a week after her due date, and not go home with a babe. What was God thinking? Eden Hope was born, and for a few minutes the family rejoiced... and then the medical folks said something about her not being pink enough. I can't even write out the details, so I'll give you the facts (in a much more direct manner than the 6 hour ordeal unfolded). It turns out that our neice had a rare lung disorder, where the lungs look okay on ultrasounds- but aren't formed. There's nothing to be done. And so she came, and six agonizing hours later, she went back home.
There are no words. Plenty of tears, but no words.
You know the saying, a picture is worth a thousand words? I have two images in my head from our recent visit. Her parents showed us a few pictures- imagine the standard 'newborn baby with the family in a hospital' - mom holding baby, dads arms around them both. Or grandparents looking down at the tiny one. But in all of these, our babe doesn't have a healthy pink color, and no one is smiling. Not even close- you can see everyone's heartache on their faces. It is the saddest, surrealist thing I've ever seen.
Jim had made it up for the funeral (it's his brother who's the dad). The uncles were pallbearers, and all he could say to me after was, "The coffin was so tiny, it weighed *nothing*." Later, he'd just repeat himself, "it weighed nothing." A few days later, he told me, "There shouldn't be something made so small." I knew what he meant, but the reality of the tragedy hit me when we visited her grave last week. The fresh mound of dirt was... so tiny. So small. There shouldn't be a need for a grave that barely fits two flower arrangements.
Even now as I type, I know that I could write another thousand pages, and there would be no words that capture this. No words that would ease her parent's suffering. No words that would explain the mystery to her siblings or cousins. No words to calm the dragons of doubt, the "if only" saboteurs.
Perhaps her name can be the only word that gets the family through this darkness: Eden Hope. Once, God revealed the Divine Self as "I am who am" - a name that makes no sense. And when the angels announced the Messiah, they named him Emmanuel, "God with us." There is no theology that can make sense of how a loving God allows such tragedy. But perhaps we can find Hope in the Presence of God, revealed in so many ways by so many people "with us". Perhaps those names- Hope, Presence- are the only words that matter.